This is Luka, a 12-year-old boy who is trapped in his own body. His muscular dystrophy means he gets weaker every day, and can now only move his fingers, which allow him to operate his wheelchair.
Unlike other boys his age, Luka can’t run, swim or skateboard but with the help of Slovenian photographer Matej Peljhan, he has been able to do all these things and more, in pictures at least.
“He is well aware of his fate but he doesn’t give in, either,” Peljhan wrote on his website. “He wants neither pity nor empathy but wants to stay positive and focused on the things in his life he can (still) do.”
Luka’s body gets weaker every day.
Luka uses a special device to paintstakingly create drawings.
Luka wanted to see himself “making mischief” in a photo.
Photographer Matej Peljhan decided to help his dreams come true.
Luka is incapable of most everyday activities.
Most muscular dystrophy sufferers die at a young age.
Luka is aware of his prognosis but wants to live his life positively.
Luka wants to be an inspiration to others with the disease.
