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The Rare Project: woman photographs children with rare disabilities

The Rare Project: woman photographs children with rare disabilities

Ceridwen Hughes knows what it is like to deal with an extremely rare medical condition. Her son Isaac was diagnosed with Moebius Syndrome when he was eight months old, and Hughes soon learned that it wasn’t just dealing with the diagnosis that was difficult. “Because the condition means that he looks slightly different, people have […]
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Dyslexie Regular typeface. PHOTO: Dyslexie Font website.

A font designed to help dyslexics read better

Dutch designer Christian Boer, a graduate of Utrecht Art Academy, has stepped up and created a dyslexic-friendly typeface to make reading easier for dyslexics like himself. Called Dyslexie the font, originally created as part of Boer’s 2008 university thesis, looks a lot like typical lettering, but is customised so that the variation between each character […]
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Nicholas Crowne in Kindergarten and at the top of Mount Kosciuszko. Pictures: Supplied

How Nicholas said: ‘Goodbye wheelchair’

He drew his inspiration from watching his twin brother Chris running and jumping and playing. And he was determined to do the same – so much so that earlier this year he managed to participate in a walk to the top of Mount Kosciuszko. “Right from the beginning, Nicholas was always ready to try anything […]
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Rejecting Gammy is a good thing

Rejecting Gammy is a good thing

Sunday night's 60 Minutes interview with David and Wendy Farnell has shocked and appalled many in the community, but the horrific circumstances of baby Gammy also provide us with the opportunity to combat the negative perceptions of people living with Down syndrome.
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Catia Malaquias with her gorgeous son Julius.

New study hopes to help those with Down syndrome

Compose, the research study based at Neuroscience Research Australia (NeuRA) hopes to increase language, learning and memory in people with Down syndrome through a medicine being tested around Australia. Professor Rhoshel Lenroot who is leading the study says the medicine they are testing is a compound called BTD-001. It was originally used to treat senile […]
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Ann Sherry and her son Nicholas. Photography by Nick Cubbin. Styling by Jamela Duncan.

Having a disabled son taught me about love

Ann Sherry – head of cruise line Carnival Australia – is one of Australia’s most respected CEOs. She is the woman credited with introducing maternity leave to corporate Australia in the mid-’90s  when she was an executive at Westpac, the former head of the Bank of Melbourne and the first woman to run a bank […]
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To you, he's a Down syndrome baby - to me he's just perfect

To you, he’s a Down syndrome baby – to me, he’s just perfect

To some people, Katrina Abianac’s eight-month-old son Parker is just another Down syndrome baby but to her, he’s a beautiful little boy who just happens to have Down syndrome. It’s a small but significant distinction Katrina wishes more people understood. My world spun and clicked when I was told my baby son had Down Syndrome. […]
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Luka is photographed "skateboarding" despite his body getting weaker by the day.

Clever photos free boy trapped in his own body

This is Luka, a 12-year-old boy who is trapped in his own body. His muscular dystrophy means he gets weaker every day, and can now only move his fingers, which allow him to operate his wheelchair. Unlike other boys his age, Luka can’t run, swim or skateboard but with the help of Slovenian photographer Matej […]
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'You are my hero': A mum's letter to her baby with Down syndrome

‘You are my hero’: A mum’s letter to her baby with Down syndrome

Kylee Davie’s four-year-old daughter Veronika was born with Down syndrome, cerebral palsy and a congenital heart defect. She wasn’t supposed to live, let alone walk, but last month, Veronika strode into school for her first day with all the other kids. To celebrate World Down Syndrome Day on March 21, Kylee shares a letter she’s […]
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My little boy is a model - and he has Down syndrome

My little boy is a model – and he has Down syndrome

Julius is like any three-year-old, energetic and curious. He is also a child model, which his mum, Catia Malaquias, hopes will challenge the negative stereotypes that come with his Down syndrome. “Julius is going to be a model for eeni meeni miini moh, a children’s fashion brand, and the photo shoot is in Brisbane,” I […]
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